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Health Data in the Information Age: Use, Disclosure, and Privacy

From the very first meetings, in the early 1970s, of the newly constituted Institute of Medicine (IOM) of the National Academy of Sciences, a major objective has been the engagement of the most important and difficult health and science policy issues from the public's or society's perspective. The Institute was created so that a broad-based and multidisciplinary membership could work across professions, within and without the health sciences, toward the solution of these complex and difficult problems. From my personal experience as a staff member at the IOM during the first four years of its life, I can attest to the early recognition of the importance of the process of having a balanced, multidisciplinary committee working on the policy issues at hand. The assumption was that the sum of the parts of such a diverse group was surpassed by the synergy of the whole; more often than not, this positive learning experience also produced a useful document or report. In my personal experience with such groups, I cannot recall a failure either in the product and its value or in the process and its impact on the individuals participating. I must say, however, that the challenges facing this committee on regional databases were so great and our initial difficulties so intense in becoming clear about and comfortable with the seminal questions embedded in our charge that I was not optimistic about either our two-year experience together or the product that I could envision emerging.

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Series Title
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Call Number
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Publisher
: .,
Collation
1-272
Language
English
ISBN/ISSN
0-309-53821-1
Classification
NONE
Content Type
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Media Type
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Carrier Type
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Edition
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Subject(s)
Health Data in the Information Age: Use, Disclosur
Specific Detail Info
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Statement of Responsibility
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